Thursday, March 21, 2013
RSV. Part 4
After that amazing half-smile, things slowly improved, but not until after a long, hard night. He still had the feeding tube and cpap machine on. He had not eaten in 40+ hours though. A feeding tube bypasses the stomach so even though he was getting the calories he needed, he had no sensation of being full. Well, I called in a nurse after they removed the Cpap machine and we rearranged all the tubes and cords and made it so I could squash a chair right next to his crib and hold him. That was an amazing, amazing moment. He calmed instantly once he was in my arms. But then, he recognized my smell and feel and started trying to nurse. He was still unable to and it was making him inconsolable so I had to lay him down. That actually calmed him but it broke my heart. Then he realized he was hungry and the crying started. He cried and cried and cried. At my wits end, I called a nurse and said there had to be something we could do for him. As weird as it sounds, they brought my 2 tablespoons of breastmilk and a pacifier. I could dip the paci in the milk and let him suck on it. He was in Heaven. He "drank" about one tablespoon one drop at a time and fell sound asleep. I had to repeat the process with him numerous times throughout the night. The next day he was simply ravenous so the doctor said I could bottle feed him. He started with one ounce. At the moment that was enough. By the end of the same day he was up to 6 ounces at a time! They removed his feeding tube and began to wean him off the high flow oxygen. Unfortunately we moved a bit too fast and he took a step back. They increased the flow for about 12 hours and tried it again. This time, his stats remained steady and he passed his blood gas tests again! Once he sustained that for 12 hours, they put him on regular oxygen and we moved to regular floor. Bye PICU! My husband knew I needed to spend time with the other kids and get some solid sleep so he came to spend a special night with the Linebacker. They hung out and watched HGTV. But that night he polished off all the milk I had pumped. And when my husband tried formula, the Linebacker would have nothing to do with it. So I had to load up the kids and rush back down after only being gone about 12 hours. Thankfully, the Linebacker was to be released that day around 4:30. 5 nights and 6 days in the hospital, one ambulance ride, 2 ER rooms, 3 rooms in the hospital, 3 nights in PICU, 5 IV attempts and over 10/heel pricks later our son was HOME!